An official of the Department of Health and Human Services said on Friday that the health department was not producing autism registry, which opposed a declaration a few days ago to describe his plans for autism by the National Health Institute Director.
“We’re not creating an Autism Registry. The Real-World Data Platform will attach existing datasets to support the insights in the reasons of autism and in advanced treatment strategies,” an official of the department told CBS News in an email statement.
The Outline of planning NIH Director Dr J Bhattacharya as part of the Health and Human Services Secretary to collect a wide swath of confidential health information Robert F. Kennedy Jr.’s autism research attemptAdvocacy groups and autism researchers have become the subject of intense criticism in recent days.
Some suppliers who are diagnosed and treated with autism have been confused by the request to scrub their data and cancel the appointments, multiple federal health officials told CBS News that it would be used to support the baseless claim with concern over the patient’s privacy and anxiety.
The opposite of HHS opposed Bhattacharya was first published by Stat News.
The NIH director said earlier that as part of a meeting of the agency’s advisors about this attempt, NIH “will develop a new” national disease registry “for autism” for autism and other chronic diseases to be integrated into a new “data platform”.
HHS officer Bhattacharya did not initially misinterpret or explain why his plan was reversed. Bhattacharya did not respond to any request for the comment. CBS News did not respond to the request for an interview with Bhattacharya about HHS registry.
The HHS official statement said “ASD’s reasons for understanding the reasons” will be invested about $ 50 million in research attempt, which includes data platform [autism spectrum disorder] And improving the treatment by encouraging cross-sector cooperation to earn large size data resources “”
According to the officer, NIH is still planning to explore partners with other federal agencies, including Medicare and Medicaid Services centers, “to simplify a wide real-world health datasate, which maintains the highest quality of protection and patient’s privacy when supporting research in other cases such as autism and chronic disease.”
In a statement to CBS News, the NIH states that its “protected data repository” will analyze the “large, de-cornary data” like the agency’s cancer database for autism and chronic diseases. Autism Research Federal Privacy Laws and Rules “will be fully loyal”, the company says.
“These attempts are not about tracking people. All NIH-directed databases follow the highest standards of protection and privacy with protection of personal health information as a top,” NIH said.
In the HHS statement the latest change in Kennedy’s autism research attempt has been identified in recent weeks, since he announced this push at a meeting of the first White House At the beginning of this monthThe
Bhattacharya told reporters At the beginning of this week He expected the donation fund for autism research that “hopefully” will be awarded by September. After that Primary timeline Narrated by Kennedy, who said that “by September we know what the autism epidemic happened.”
“It is hard to guarantee when science will be in advance. It depends, you know, there is a statement of nature,” said Bhattacharya.
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